BBC地平线:我与脊柱裂

  • Ruth Madeley
  • 共1集  |  每集 45分钟
  • https://www.bbc.co.uk/iplayer/episode/b0bcmjht/hor… https://www.bbc.co.uk/iplayer/episode/b0bcmjht/horizon-2018-4-spina-bifida-me Oneinevery1,000pregnanciesinBritainhasaspineorbraindefectlikespinabifida.Thirtyyearsago,actressRuthMadeleywasoneofthem.Despitehavingspinabifidaherself,itisaconditionshedoesn'tfullyunderstand.Inthisprogramme,Ruthsetsouttodiscoverwhyshehasit,whetheritcouldhavebeenpreventedandwhatitmeansforherfuture. Ruthmeetsthelordcampaigningforachangeinthelawthathesayscouldpreventthousandsofbirthdefects.Andshediscoversthatapioneeringsurgerycouldofferadifferentfutureforbabiesdiagnosedwithspinabifida,byoperatingonthembeforetheyareevenborn.Shediscovershowthissurgerywasinvented,meetsthefamilieswhoselivesithaschangedandfollowstheteamofBritishsurgeonspreparingtoperformthisextraordinaryfoetalsurgeryintheUKfortheveryfirsttime.ButRuthalsoexaminesattitudesinBritaintodayandaskswhetherweshouldchangethewayweseedisability.

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