2004年敬请关注！
简介：Ayearago,36-year-oldJonnyKennedydied.HehadaterriblegeneticconditioncalledDystrophicEpidermolysisBullosa(EB)-whichmeantthathisskinliterallyfelloffattheslightesttouch,leavinghisbodycoveredinagonizingsoresandleadingtoafinalfightagainstskincancer.InhislastmonthsJonnydecidedtoworkwithfilmmakerPatrickCollertontodocumenthislifeanddeath,andtheresultwasafilm,firstbroadcastinMarch,thatwasanuplifting,confoundingandprovocativelyhumorousstoryofasingularman.NotshyingawayfromthegrimrealityofEB,thefilmwasalsoacelebrationofalifelivedtothefull.WrittenbyLeonieDavidsonChannel4.…