TheBoyWhoseSkinFellOff

  • 经典
  • 120分钟
  • Ayearago,36-year-oldJonnyKennedydied.Hehadaterribl… Ayearago,36-year-oldJonnyKennedydied.HehadaterriblegeneticconditioncalledDystrophicEpidermolysisBullosa(EB)-whichmeantthathisskinliterallyfelloffattheslightesttouch,leavinghisbodycoveredinagonizingsoresandleadingtoafinalfightagainstskincancer.InhislastmonthsJonnydecidedtoworkwithfilmmakerPatrickCollertontodocumenthislifeanddeath,andtheresultwasafilm,firstbroadcastinMarch,thatwasanuplifting,confoundingandprovocativelyhumorousstoryofasingularman.NotshyingawayfromthegrimrealityofEB,thefilmwasalsoacelebrationofalifelivedtothefull.WrittenbyLeonieDavidsonChannel4.

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