TheBoyWhoseSkinFellOff

• 清晰：BD
• 类型：经典
• 主演：
• 年代：2004 / 英国 /
• 导演：
• 国家/地区：英国
• 时长：120分钟
• 语言/字幕：国语对白 中文字幕
• 年代：2004
• 更新时间：2024-04-08 01:08:14
• 详细介绍： Ayearago,36-year-oldJonnyKennedydied.Hehadaterribl… Ayearago,36-year-oldJonnyKennedydied.HehadaterriblegeneticconditioncalledDystrophicEpidermolysisBullosa(EB)-whichmeantthathisskinliterallyfelloffattheslightesttouch,leavinghisbodycoveredinagonizingsoresandleadingtoafinalfightagainstskincancer.InhislastmonthsJonnydecidedtoworkwithfilmmakerPatrickCollertontodocumenthislifeanddeath,andtheresultwasafilm,firstbroadcastinMarch,thatwasanuplifting,confoundingandprovocativelyhumorousstoryofasingularman.NotshyingawayfromthegrimrealityofEB,thefilmwasalsoacelebrationofalifelivedtothefull.WrittenbyLeonieDavidsonChannel4. 详情